Thursday, April 2, 2009

The Update

Today we met with my oncologist. He was shocked that the cancer was spreading. He agreed that the Interferon wasn't working and that we would have to try something else. The meds available through him were not really any meds that he would recommend. His recommendation was to get into MD Anderson in Houston, TX. They are the best of the best. They have lots of different meds there and if they can't help me they will send me to Bethasada, Maryland where they do a lot of studies for the National Institute of Health.

The Dr was very positive that MD Anderson would be able to help, but he was also realistic. What will probably happen now is that I will be on a maintenance drug for the rest of my life. I wasn't very excited about that. But, I will also do what ever I have to do to survive.

They ran another CT scan today from my head to my pelvis. I am also having another PET scan tomorrow (at 5:45 AM!!). I have been having headaches lately, which I am hoping is because of the crazy weather changes we've been having in KS. I have also been short of breath. Again, hoping it is more of an allergy/asthma thing. However, when you have cancer, EVERY LITTLE THING totally freaks you out. Please pray that the scans come out clean.

We leave on Sunday for my appt at MD Anderson. It will just be Cody and I. My parents are staying with the kids at our house. This has been a little hard on me. My babies are my strength. I want them near me at all times. But, this is how we have to do it. I'm not worried about them. That's not the issue. I just don't want to be away from them. I love them so, so much. But, in theory, I am doing this for them. I am doing it so that I am around for them. I know they will understand.

31 comments:

Chelle said...

Sending prayers and good vibes for you, Heather. You are a strong, strong wife, mother and woman!

(((hugs)))

Alicia said...

You are in my prayers each night. Stay strong and your children will understand that you have to do this. XOXOXOXO

The Hooper Family said...

I am relieved you got in so quickly to MD Anderson. I know you will miss the kiddos, but you have the right attitude. Can your parents email pictures??? That always makes me happy when I'm away from my babies...that and to hear their voices on the phone. You are in my prayers, as well as many others that I've shared your story with. Safe travels!!!

Clare said...

you are just breaking my heart, i really hope that these other specialist will get this all figured out. If you come to MD, I am so coming up to visit you!!

23 Weekers said...

You have all of my prayers.

Shanon

Lillie's Playground said...

Sending love and prayers your way.

Tricia Nugen said...

Honey, I'll be thinking about you. MD is a wonderful place. And you do whatever you need to do to make it work. Your babies will be just fine right now you need to do. Take care of yourself so we can start the Kick Cancer Ass campaign again. We're behind you and whatever you need just let us know! We'll be the best cheerleaders you've ever had. Think No Doubt "Hollarback Girl". That's us!

Tara said...

Saying a little prayer for you and your family. You will beat this!!

MD Anderson in Houston is the best! My grandpa went there for years. All other drs had given him weeks, MD Anderson gave him 12 yrs of great life! So have hope, faith, and you will get through this stronger than before!

Ellie Grace and Bennett said...

I am thinking about you! Like I said before, I am happy to do anything I can for you while you are in Houston. We don't live far from the med center and would be happy to even take you out to dinner if you want a night out while you are here. MD Anderson is going to be such a blessing for you and your family!
xoxo,
Ang

Rach (Mommy Learns to Blog) said...

Oh Heather, I am just reading the last 3 entries you posted. My heart is breaking for you. Please know that you and your family are in my thoughts and prayers.

I hope that MD Anderson will be able to provide exactly the treatment your body needs to kick this.

Christy said...

You are doing everything that you can to get better. Your babies will be fine. Take care of yourself Heather.

Carolyn said...

Sending prayers your way! You are very strong and you will beat this!! I have always heard Houston is the best so you are doing the right thing by going there!! Hold on to hope always and know that a lot of people are pulling for you!!

Chris said...

Safe travels and I continue to pray for you!

Hope said...

You are such a wonderful Mom! I totally agree about freaking out about everything when you have cancer. I wish that got better with time, but not really. I think MD Anderson will help you. Thanfully you can go to the BEST!! I'm praying for you, hun.

Anonymous said...

Heather you are in my thoughts and prayers!!! Your kiddos are in good hands so go get better!! I miss you and hope to see you soon!

Love Tatum

Kerri said...

I am so sorry to hear that you have to go through all of this. I live in Houston and my mom is currently going through breast cancer treatment at MD Anderson. They are absolutely wonderful. They have been great at every step of the way. I hope that they can give you some good options.
-Kerri Welsh

Wendy said...

I have prayed for you every day. Blessings and Love!!!!

Adam and Andrew said...

You have been on my mind a lot. As a mother, of two little ones, who has had melanoma 3 times, I've been praying for you constantly. I see Marek Ross at MDAnderson and he's wonderful as are the rest of the Melanoma team there. May God bless you and may you get good news on all your upcoming tests.
~Lindsey~

2 Corinthians 12:9-10 And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong.

Lindsay said...

Sending prayers up for those scans right now. For your travel for your kiddos to not be to anxious with you and your husband gone and for your strength!

Amy Amy Bo Bamey said...

Heather I pray that MD Anderson has a quick and effective treatment plan for you! You are constantly in my thoughts and will continue to be! Stay Strong!

Anonymous said...

I am so happy that you are going to MD Anderson. I remember many years ago my Aunt made the same trip. She did very well there and she LOVED everyone that worked with her there. Please know that we are behind you and thinking of you all of the time. If you ever need anything we are always here to help. You know how they tell us to give our babies something that smells like us to help them sleep at night? Same for you...take something that belongs to Kyler and Ella... have a safe trip... we'll be thinking about you!!
Shelley, Don and Izzy

A Crafty Mom said...

Good luck, Heather. I'm thinking of you and you are in my prayers. You're an amazing woman, and I am certain, without a doubt, that you can do this.

(((HUGS)))

Hair Bows & Guitar Picks said...

I am praying for you!

Be strong for those babies :)

Shelly~

Wonderful World of Weiners said...

Just stumbled onto your blog and wanted to say that I will keep you in my thoughts and prayers. My husband has had skin cancer twice and it was scary both times. Will be back to check on you.

And love your pug!

Hallie

Jayme said...

I will pray that your trip is a big blessing.

Me said...

Thinking of you and your family.

LOVE

amanda said...

sending prayers and safe travel wishes...

throwslikeagirl74 said...

Ugh. Stupid cancer. It sounds like you have a great group of doctors who will get you set up with the right cocktail. Hugs and prayers.

fortyb4forty said...

I've been following your blog for awhile but can't remember how I found you, maybe your pug (we have 2 pugs). I am praying for you that you will have peace, strength and healing as you go through this process.

Melinda said...

Heather,
You can do this. Just breathe and stand fast. Sending you prayers and positive energy.
Huggers,
Mel

The Mrs. said...

im sending you every prayer and good though I can! I'm so amazed at your strength.

big hugs to you and your family!

 
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