Friday, February 19, 2010

Check, Check, and Not Quite

I heard back from the nurse at Vanderbilt, which is the cancer center in Nashville. I have an appointment scheduled with them for March 1st at 2pm. It actually works out perfectly. Odd, right? I know, so maybe this is a sign. We will have to fly out of KC each time because it is a third of the cost of where we usually fly out of. Luckily, my folks aren't to far, my sister is not to far, and my BFF is pretty close too. So, we have lots of option for babysitters:) Especially this summer when Aunt A is off:) Hint, hint:)

Anyway, we will head to KC on Sunday because we had already planned a night at Great Wolf Lodge as our Valentine's Day present for the kids. Our kids don't need more toys, but we can never get enough family time! So we will do that on Sunday, on Monday my folks will meet us and pick up the kids, we will drive to the airport. We will fly in to Nashville, take a cab to the Cancer Center, meet with the Dr, fly out that evening then go to my parents house to stay the night. See, it's working out.

At the appt. they will do a Gnome test to make sure I qualify and La Roche (the company that makes the RO5 trial drug) will also do their own testing to make sure that I am, in fact, B-Raf positive. The Gnome test takes about 8 days to get back. In the meantime, we just wait.

If I qualify we will make another trip down to Nashville to get started on the trial. The trial requires about a 20 day stay in Nashville because I will have lots of blood drawn every.single.day. I will be hospitalized a few of those days, however, I shouldn't be to sick. They just have to really monitor my diet those first 20 days. By monitoring, I mean make sure I don't drink any Diet Pepsi. I know, shoot me now right?! However, I did it while on Biochemotherapy, and that was by choice, so I know I can do it on this. I think I may be able to drink the Caffeine Free, which isn't the same, but it will work. I don't necessarily drink it for the Caffeine, I just love the taste!

We are hoping (and praying) for several things right now. One, that by the time we find out that I qualify, that there will still be a spot for me. Two, that I won't be extremely grouchy from no caffeine! And three, that with the help and support of my family, that over those 20 days some (or several) different people will be able to bring the kids down to Nashville and stay with them (and us) while I am doing all of this. I do NOT want to leave the kids for that long. Quite honestly, I'm not sure I can. So, since the flights are so cheap, we are hoping that after we get this all figured out we can set up a schedule so that they can be with us. At this point I am not going to stress out about that. No sense worrying about that if I don't even get in to the trial!

I am also waiting on an appt from MD Anderson for the GSK-B inhibitor trial. For some reason they are taking their sweet time in scheduling me.

I am truly putting all my faith in God. I know that He has His reasons for all of this. What ever is supposed to happen will happen. However, I am not above pushing them along:)

Please continue to pray. Some days this fight gets so old. I have my good days and I have my bad days. But, no matter what kind of day it is, when my beautiful 2 year old and my handsome 4 year old give me one of their great big bear hugs and slobbery kisses, I can't help but dig in my heels and fight a little harder. Thank you K and E for making your Mama fight a little harder. Without you I'm not sure I could do it. I love you both.

7 comments:

Evansmom said...

You really are Wonder Woman. Keep up the fight.

Chelle said...

I've said it a million times, but you are amazing. As a fighter, as a mother and as a wife. This post made me tear up. Your last paragraph just touched me.

Love ya girl. And my entire family is praying for you! I talk about you a lot--just how admirable you are!

xo

Tricia Nugen said...

O Heather! I know this is such a trying time for you! You are an amazing woman! If I new how to sew I would totally make you the cutest Super Hero outfit! It would be bedazzled and all jeweled up. You are what a true role model mom should be. Someone who doesn't give up, supports others when she has the fight of her life on her hands and still teaches us all how to cope. God Speed to you for a healthy and happy recovery!
xoxo-Tricia Rae;)

Holly said...

Hey Heather-
We are all praying for you! and I think you're amazing. Also, I have some free flights that I've earned with Southwest because I fly quite a bit for work. I'd love to give them to you if you'll be flying Southwest. I assume you have already bought tickets for this trip to Nashville but if you have to go back, or have to go to Houston please let me know and I will give you those.
Love ya!
Holly Watts

Clare said...

i hope that one of these trials is a good fit!! i can't imagine being away from the kiddos for 20 days. even one visit would really lift your spirits!! i just can't imagine juggling all of this, motherhood, and family. thinking and praying for you!!

Christy said...

Keep fighting! Thinking of you...

Cindy said...

Keep up the fight, girl! It sounds like the pieces are coming together. (((hugs)))

 
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