Friday, April 10, 2009

Home Again, Home Again

We finally made it home late Wednesday night. It is so nice to be home with my munchkins. Daddy and I have both loving the kids up. So much so, that Kyler actually asked me to STOP kissing him! Silly boy, that will never happen!

While we were in Houston I got all sorts of fun little gifts for the kids. They were both so excited to open all their gifts. It was fabulous seeing the looks on their faces as they took each item out of their bag.

Besides shopping, which is, of course, one of my favorite things to do, I also got to meet another one of my bloggy friends. Shana, Olivia, and Jacob were able to meet us at McDonald's for a quick lunch. I seriously love meeting all my bloggy friends in real life. Thanks for meeting us for lunch and I hope we can meet up again (since I will be there quite frequently!)

Here is the cancer fighting plan for next week:
We will be driving to Ponca City, OK where we will fly on a corporate jet to Houston. For free! I am stoked! We don't have to make the 10 1/2 hour drive! This wonderful program is through The Corporate Angel Network and we couldn't be more grateful for it!

On Monday I have labs in the morning, I will have a heart catheter placed, an appt with the Dr, and then will be admitted to the hospital for treatment. At this time our insurance has only approved treatment for 5 days instead of 7. For this first treatment, that may actually be ok. All these drugs have some pretty nasty side effects. A lot of patients can not handle the full dose. We will see. I am, quite honestly, willing to go to hell and back in order to get rid of this. I guess what worries me though is that I go through all of this and then it comes back anyway! Now that will really piss me off! But, what can I do? Nothing. I will just fight it with all my heart and soul and pray lots and lots that I am in the 13%.

Thank you to everyone who has offered to send us gift cards and bring us dinner. Your love and genorsity is overwhelming.

Wednesday, April 8, 2009

Wanna Help?

A few people have asked, sent emails, called, etc. what they could possibly do to help us out.

Well, short of getting rid of this stupid cancer for me, something that would really help us out are gift cards to fast food restaurants. One of my friends sent us a McDonald's gift card and that has been fabulous. We used it on the way down here and will use it on the way home also.

Something else that would be helpful are dinners for when we are at home. At this time we have no idea how I will feel, but since I don't feel like cooking when I feel well, I am guessing I won't feel like cooking when I feel awful:)

Another idea are snack foods. I'm a major snacker. I love things like cookies, crackers, and chips.

We would also appreciate books, magazines and books on tape. So if any of you have those laying around your house that you think Cody and I would like, bring them over! I checked out some books on tape from the library for this trip, but so far my choices suck!:(

Thank you for all of your support and love. I am trying really hard to stay positive. At times I get upset, but I read your comments or your emails and it renews my strength. Thank you for that. It's hard to keep a positive outlook at all times when you are going through all this. Thank you for reminding me that you are all out there, thinking about me and my family and praying for us. I can do this. I will beat this. I will be around for many, many years.

Tuesday, April 7, 2009

Shopping and Breathing

Today we were able to enjoy a little bit of shopping in the morning before we had to return to MD Anderson. I don't think Cody enjoyed it nearly as much as I did, but it was nice to get out and actually have the energy to shop!

In the afternoon I had a chest x ray and a Pulmonary Function Test done. The x ray was fine, but the PFT sucked! Lots of holding my breath forever and blowing it out. Good times.

Tomorrow I have an Echo and a Stress test scheduled at 8AM and then we can head home. Woo Hoo! I am ready to be home. I miss my babies sooooooo much. I have cried so many times because I miss them so much. I am really looking forward to seeing them tomorrow night.

One of the highlights of this trip, besides the whole "We have a plan to kill this stupid cancer" part, was meeting one of my favorite bloggy friends! I don't have pictures of Angie and I. But she does. We met at the Hard Rock for some food and drinks. It was nice to be able to sit and talk with adults and talk about something other than cancer (of course that subject came up a bit though!).

Thank you Angie, Brandon, and Miss Ellie Grace for a wonderful evening.

Monday, April 6, 2009

MD Anderson Visit

We just returned from our visit with the Dr at MD Anderson. I feel the visit went very well and the Dr was quite positive that the treatment plan we have worked up will work.

I am going to be on quite a combination of drugs and will probably feel like shit for quite awhile. However, this is the best treatment plan that is available at this time (and it only works 13% of the time!)

The plan is to get some tests done (hopefully Tues or Wed), then head home. We will have to return on Sunday and on Monday I will have labs, they will put in a Central Venous Catheter, I will revisit the Dr and we will begin treatment that evening.

I will remain in the hospital at MD Anderson for one week. I will then return home for two weeks and then head back down for another week. This will continue for 6 week long treatments. I should be done with treatment in August sometime.

I am not very excited about this. I will have to be away from my babies for those weeks that I am hospitalized. They are not even allowed to visit. That will be killer. I am already dreading that. But, what is the alternative? I have no choice and I realize that. It still sucks though. This whole situation sucks.

Thank you to all of you for your prayers, thoughts, well wishes, and comments. I love reading your comments. You guys put a smile on my face with your encouraging words. Please, keep them coming:)

PS The results from the CT scan and PET are in. My organs and brain are cancer free. They did find a couple more masses of Melanoma. At this time they are not going to be biopsed because the treatment plan they are putting me on will get rid of the masses. Someday I will tell you guys a very humorous story about where the masses are and the poor Dr. But, not yet. That is a whole other post:)
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