Friday, February 26, 2010

Recent Trip

ThursdayI flew to Houston for an appt with the Targeted Therapy dept on Friday. Since my lovely husband already had some work meetings scheduled in New York, I went by myself.

The Drs in the Targeted Therapy dept were excellent. Very personable and explained everything in "normal" terms that everyone can understand. It was kind of nice!

The trial that I met with them about was the GSK-B inhibitor trial. I was under the impression that the trial was a B-Raf inhibitor trial, however, it is actually a MEK inhibitor trial. I could go deep into an explanation, but I won't bore you with that. I will say that a MEK inhibitor trial would be ok, however, a B-raf trial would be better. The short and easy explation is that the Braf tells the cancer nuculous to divide and multiply, the MEK is what tells the Braf what to do. So, if we can go straight to the Braf gene mutation it would be better.

However, the good news is that in a few weeks they will be opening a trial through GlaxoSmithKline (GSK) that works on the Braf gene mutation AND the MEK.

For now they agreed to hold me a spot for the GSK (thhe MEK inhibitor one) trial in Houston. This way I at least have something. Definitely helps ease my mind.

The Dr that I met with in Targeted Therapy would prefer that I get into the trial in Nashville. He feels that that trial would be a better fit for me. They are having more success with that trial. In fact, it is working in 70-80% of patients with recurring melanoma. The downside is that it is only keeping the cancer away for about 8 months. Boo! If you have done any research on melanoma you will know that the chances of recurrence are great. And that chances of survival past 5 years are slim. Another boo. However, they are coming out with new trials and new findings all the time. So, I have a plan. Get into the trial in Nashville, if it works do that as long as I can. The treatment is a pill that I will take twice a day and I can remain on it indefiniately. As long as it is working I can be on it. After it quits working I can start on a MEK trial. See, I have a plan:)

We appreciate all the prayers that you all are throwing out for us. You can never have to many of those!

Monday, February 22, 2010

One of my Loves…

I am fairly certain that I could NOT love this little girl more than I already do.

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I love to watch her “read” stories to her babies.

 

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And when she rocks her babies night night? Super cute!

 

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And I love it when her and Kyler get along. Pure bliss I tell ya!

(Don’t mind Kyler’s hat…I pick my battles!)

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I don’t even mind it when she throws her fits….

 

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because once she calms down, she wants her mama and only her mama!

I love you Miss Ella. Fit or not, you truly are my little Princess.

Muhwaa:)

Sunday, February 21, 2010

Reward Points

A dear friend called me today and told me that she would like to donate her airline miles reward points to me. How sweet is that?

I also had another friend leave me a Facebook message letting me know that her and her husband have two free flights that they would like to give us if we would like them. Would we? Heck yeah!  (By using one of the free flights, they saved us over $400! Thank you so much Theresa and Evens, we love you guys!)

With all these Dr appts and trying to get into trials, it means a lot of flying, a lot of staying in hotels, and a lot of eating out. I wonder what Dave Ramsey would tell us to do?! So much for the whole saving money goal, huh!

My friend suggested doing a post to let you all know if you would like to do something to help, but really can't afford it, a simple way to help is by donating your airline miles that you may have on a credit card. Of course, not if you are planning on using them, I'm not asking you to do that. But, if you have them, and you don't have a use for them, we would love to put them to good use.

Also, if you ever have the desire to shop on Amazon (I shop there constantly!) please, please use the link on the side of my blog. The proceeds will go directly to my fight against cancer. Unforunately, there is no banner or way for you to know that, but Amazon has assured us that we will profit from it.
Asking for help has never been a strong point for me. I prefer to do it myself. Always have. This last year and a half I have had to ask for more help than I ever have before. I don't like that. However, cancer hasn't really given me a choice. So, I thank you in advance for all of your prayers, your kind emails, your cards, your donations, your food, your phone calls, and your love. It all means so much to us.

If you would like to help, please email me at cancersucksmonkeyballs@yahoo.com

I just set that email account up today. Can you believe it wasn't taken?! Crazy right:) Ha! Now it's all mine. Jokes on you guys. Jealous?
 
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